"This is the day that the Lord has made, let us REJOICE and be glad in it."

Thank you for all of your positive thoughts and words. We are humbled by your thoughtfulness.

This is an interesting journey. I have learned, yet again, to be thankful for good health. At the same time this whole experience is one of helplessness as a Mom. This is a problem I can't fix. Fortunately I believe we are in the right place and we will get answers. I'm pretty sure Kylie's lack of patience came from my gene pool. I can relate! She has had 4 EEGs and an MRI (so far) since we got here, and is monitored continuously, I'm thinking they should have some answers!!!! Then I look at the patients and families going by in the hallway and am thankful that Kylie is walking, talking, studying, texting, and doing jigsaw puzzles!!! I remind myself that it is worth the wait and in the scheme of things it is a blink. So I will "go lay down by my dish" and wait--patiently. The first technician Kylie saw when we arrived on Monday morning assured us that we would get answers and I truly believe that!